Société de Pneumologie de Langue Française (SPLF)
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Chairman: Pr Jesus Gonzalez
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Number of members: Over 1,500
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Scale: International
Founded in 1905, the Société de Pneumologie de Langue Française (SPLF) is a learned society bringing together all French-speaking pulmonologists working in private practice, hospitals or university hospitals in France and some fifty other countries, with the aim of studying respiratory diseases in all their forms. Its objectives are to:
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To study all aspects of prevention and therapeutic education in the context of respiratory diseases.
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Provide scientific expertise to public institutions
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Promote pneumology as a medical specialty
Association ADAAT
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Chairwoman: Sandrine Lefrançois
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Number of members: 174
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Scale: National
Founded in July 2007, the ADAAT Alpha 1-France association is dedicated to providing information and mutual support. It brings together people with alpha-1 antitrypsin deficiency. This rare genetic disease affects the lungs in adulthood (emphysema aggravated in smokers) and the liver in both children and adults (large liver, disturbed balance, cirrhosis, cancer...).
The ADAAT Alpha 1-France association is campaigning for better understanding of the disease and for a cure.
It is supported by a scientific advisory board made up of several professors and specialist doctors.
Association De L'Air
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Chairman : Jean-Pierre Laissaigne
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Number of members : Over 200
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Scale: National
Patients, carers, caregivers, friends... determined to improve the fight against lung cancer. De l'Air! is an appeal. It is addressed to all: public authorities, politicians, laboratories, researchers...
Two objectives are particularly close to our hearts: prevention and early detection. General practitioners have an important role to play here, and medical researchers have a unique field of experimentation: identifying the markers that will enable early detection of lung cancer; patients are ready to throw their weight behind the introduction of systematic screening for people at risk.
Association Fibrose Pulmonaire France (AFPF)
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Chairman: Jean-Michel Fourrier
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Number of members : Over 1500
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Scale: National
The AFPF, officially launched on March 8, 2022, is a continuation of the actions undertaken by the APEFPI ( Association Pierre Enjalran Fibrose Pulmonaire Idiopathique) since its creation in 2011. It provides a forum for information, meetings and exchanges for patients suffering from all forms of pulmonary fibrosis.
AFPF works daily to support, mobilize and raise awareness of pulmonary fibrosis, including the most serious: idiopathic pulmonary fibrosis (I.P.F.),
Managed and run by volunteer patients, the association works to raise awareness among the general public and healthcare professionals alike of these rare, disabling and irreversible lung diseases, which can be fatal in the short term.
Associations de Formation Continue en Allergologie (ANAFORCAL) Caraïbes
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Chairwoman : Dr Monique Gouranton
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Number of members : Over 30 associations
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Scale : Interational
Founded in 1982, ANAFORCAL (Association Nationale de Formation Continue en Allergologie) is a federation of associations for continuing medical education in allergology.
Initially made up of French regional associations, ANAFORCAL has undergone extraordinary growth in terms of both membership numbers and volume of activity. It has opened up to national French-speaking associations for continuing education in allergology, whose creation it has encouraged and facilitated, thus uniting many practitioners from different backgrounds and practices around the same medical discipline, the same language, and a shared desire for exchange and friendship.
Association de Perfectionnement post universitaire des Pneumologues (APP)
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Chairman: Dr Hervé Pegliasco
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Number of members: Over 2000
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Scale: National
Founded in 1982, the Association de perfectionnement post universitaire des pneumologues is a learned society of pulmonologists.
Association pour la Prévention de la Pollution Atmosphérique (APPA)
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Chairman: Pr Denis CHARPIN
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Number of members: 56
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Scale: National
Founded in 1958, APPA has been recognized as a non-profit organization since 1962, and has been approved by the French Ministries of the Environment and Education.
Drawing on its scientific expertise and health-promoting approach, APPA aims to preserve air quality as a common good for all mankind. The association takes action on all issues relating to air quality, both indoors and outdoors. It works to raise individual and collective awareness by promoting and supporting access to scientifically validated information on the health and environmental effects of physical, chemical and biological pollutants.
Association Asthme et Allergies
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Director : Christine Rolland
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Number of members: Plus de 1500
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Scale: National
The Association Asthme & Allergies, founded in 1991, is a non-profit association governed by the French law of 1901, whose main objectives are :
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To provide information to encourage the detection and management of asthma and allergies
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Guide patients and their families through the care process,
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Promote and facilitate patient education to help them manage their disease and live better with it.
Collège des Pneumologues des Hôpitaux généraux (CPHG)
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Chairman : Dr Hugues Morel
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Number of members: Over 500
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Scale: National
The Collège des Pneumologues des Hôpitaux Généraux is a learned society whose purpose is to :
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Promote the practice of pneumology in hospitals (...) evaluate its practice and identify and resolve specific problems related to it
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Encourage the development of clinical and epidemiological research
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Propose screening and prevention initiatives for respiratory diseases
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Promote exchanges between pulmonologists
Comité national contre les Maladies Respiratoires
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Chairman: Pr Philippe Camus
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Scale: National
Founded in 1916, the Comité National contre les Maladies Respiratoires is dedicated to promoting respiratory health and protecting the lung.
The association's aim is to respond to emergency situations while awaiting more permanent care.
European Respiratory Coalition & International Respiratory Coalition
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Chairman of ERS : Pr Carlos Robalo Cordeiro
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Director of IRC : Bill Werner
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Chairman of IRC : Pr Guy Joos
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Scales: Européenne et Internationales
IRC was launched in September 2021 by founding partners representing the professional respiratory community, patients and industry, to which ERC belongs.
IRC's aim is to promote lung health and improve respiratory care.
The COVID-19 epidemic has increased pressure on respiratory services. The gaps revealed by the pandemic must be filled urgently. The COVID-19 disaster can be a catalyst for positive change in healthcare systems.
Fédération française des associations et amicales des malades, insuffisants ou handicapés respiratoires (FFAAIR)
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Chairwoman : Marie-Agnès Wiss-Laurent
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Scale: National
FFAAIR has been an accredited patient association since 2007. This accreditation was renewed in 2012, and again in 2017 (decree of May 2, 2017). FFAAIR is involved in information campaigns and the defense of patients' rights in the context of the recognition of respiratory diseases.
FFAAIR brings together 51 regional or departmental associations at national level, with varying numbers of members. Each association develops its own activities: reception, information, listening and support, group outings, links with social workers, etc.
Fédération Française de Pneumologie (FFP)
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Chairman: Pr Christophe Leroyer
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Number of members : Over 2000
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Scale: National
Created in 2005, the Fédération Française de Pneumologie (FFP) is a consortium of all the French pneumology associations.
The aims of the Fédération Française de Pneumologie (FFP) are to :
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To act as an interface and source of coordination and information between the various associations and organizations approved by the Federation's General Meeting, within the framework of operations mobilizing the whole of Pneumology with: the general public supervisory bodies national or international organizations industrialists
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Promote, coordinate, lead and support professional development (...)
Fondation du souffle
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Chairman: Pr Bruno Crestani
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Scale: National
The Fondation du Souffle aims to bring together all those involved in the fight against respiratory diseases at national level. In particular, its mission is to encourage and support the development of research projects in the fight against respiratory diseases and their causes, thanks to funding obtained from patrons and public generosity.
Gregory Pariente Foundation
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Chairman: Pierre Pariente
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Scientific representative: Françoise Pariente Ichou
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Scale: National
Focusing on adolescent asthma, which affects almost one in ten teenagers, Fondation Pariente aims to help reduce the consequences of asthma in teenagers. The association's actions are based on preventive information, particularly in the school and sports environments (teenagers, families and educators) through various sponsorships.
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HTaPFrance
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Chairwoman: Maggy Surace
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Scale: National
HTaPFrance, founded in 1996, is an association :
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Helping patients suffering from pulmonary hypertension (PH), and more specifically from pulmonary arterial hypertension (PAH) and chronic thrombo-embolic pulmonary hypertension (CTE-PTH), serious, progressive and disabling illnesses that are the source of severe handicaps,
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Help and support the families and loved ones of these patients,
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Helping to improve the conditions of daily life with this disease,
As such, the association :
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Offers to represent patients suffering from PH.
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Takes part in and assists medical and scientific research.
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Provides information on the origins of the disease, the various therapies available and how to manage it.
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Provides a link between patients, doctors, public health authorities, laboratories, service providers, associations and all other parties involved in PH.
Mai Poumons
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Chairman: Christophe Raspaud
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Scale: National
Founded in February 2015 in Toulouse by a group of friends and recognized as an association of general interest the same year, Mai Poumons is an all-public association bringing together volunteers from a variety of backgrounds (carers and non-carers, patients and non-patients). Mai Poumons reaches out to the general public to demystify the lung, explain how it works and, of course, the importance of preserving it. The association also organizes public events to bring together patient and caregiver associations, as well as athletes and artists
MNT Mon Poumon Mon Air
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Chairman: Pr Boris Melloni
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Director : Jacqueline DELRIEU
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Scale: National
ANTADIR is an association created in 1981 at the request of the French Ministry of Health and the Caisse Nationale de l'Assurance Maladie des Travailleurs Salariés (CNAMTS).
The association contributes to facilitating the return to and maintenance at home of any sick person requiring a medical life-support device. Its members are committed to providing state-of-the-art services for the benefit of patients, while respecting the prescriber and his or her prescription.
Réseau environnement Santé
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Chairman : André Cicolella
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Scale: National
The Réseau Environnement Santé (RES) was created to promote environmental health, i.e. to act to reduce the impact of environmental risk factors on health, particularly respiratory health. RES was the instigator of the ban on Bisphenol A in baby bottles in France, then throughout the European Union. Among its other significant actions at the time, RES initiated the Stratégie Nationale Perturbateurs Endocriniens (SNPE - National Strategy on Endocrine Disruptors), enacted in 2014 and confirmed in 2019, with the main objective of "reducing the population's exposure".
RespiFil - La filière de santé
des maladies respiratoires rares
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Project Manager RespiFIL: Céline Lustremant
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Scale: National
In 2014, the Ministry of Social Affairs and Health launched a call for projects relating to the structuring of rare disease health networks, to which the RespiFIL network responded.
The network federates resources and expertise at national level with the aim of facilitating the care pathway, diagnosis and management of patients, from children to adults. It coordinates a healthcare network comprising reference centers and adult and pediatric centers of competence throughout the country.
On August 8, 2017, the French Ministry of Solidarity and Health accredited 87 RespiFIL rare disease centers for a period of five years:
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13 centers of reference for a rare disease or group of rare diseases (CRMR), which bring together multidisciplinary hospital-based skills organized around a specialized medical team
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74 rare disease competence centers (CCMR), designed to provide care and follow-up for patients as close to home as possible.
Société Française d'Allergologie
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Chairman: Pr Pascal Demoly
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Scale: National
The Société Française d'Allergologie (SFA) is a learned society whose aim is to develop knowledge in the field of allergology on a national scale.
The SFA is open to all those involved in the field: doctors, pharmacists, nurses, medical advisors on indoor environments, dieticians, psychologists...or anyone interested in the field of allergology.
Its objectives:
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Promote allergology research
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Promote allergology in all its fields of application
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Contribute to training and information in the field of allergology
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To provide recommendations for medical practice and care pathways.
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Contribute to the advancement of knowledge in Allergology, notably through financial support for research.
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Set up multidisciplinary working groups on key issues
Santé Respiratoire France
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Chairman: Frédéric Le Guillou
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Number of members: Plus de 4000
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Sclae: National
The Santé Respiratoire France association currently has over 4,000 members, both patients and healthcare professionals. Through its actions, it contributes to improving the care and quality of life of the 10 million people affected by chronic respiratory diseases in France, and that of their families. These diseases, which rank 4th among causes of death according to the WHO, are on the increase. They share common risk and aggravation factors - environmental, lifestyle, etc. - and suffer from the same inadequacies: detection, access to care, inclusion of sufferers in society. This observation has led the association, created in 2003 under the name Association BPCO, to broaden its scope in 2019 to chronic respiratory diseases in their entirety. Its missions are to alert public opinion and public authorities, to innovate by encouraging the emergence of solutions, and to bring people together.
Société pédiatrique de pneumologie et d’allergologie (SP2A)
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Chairman: Pr Cyril Schweitzer
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Number of members: Plus de 300
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Scale: National
Created in 1998, the Société pédiatrique de pneumologie et d'allergologie (SP2A) is a learned society dedicated to the research, teaching and practice of pediatric pneumology and allergology. It participates in the activities of the Société Française de Pédiatrie, focusing on the specific management of respiratory and allergic diseases in children.
Syndicat national de l’appareil respiratoire (SAR)
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Chairman: Dr Bruno Stach
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Number of members : Over 300
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Scale: National
The Syndicat national de l'appareil respiratoire defends the interests of independent pneumologists in France and its overseas departments and territories.
It brings together respirologists who are partly or wholly self-employed. Its aim is to promote pneumology through the various medical and administrative bodies.
Vaincre la Mucoviscidose
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Chairman: David Fiant
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Number of members: Plus de 7000
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Echelle : Nationale
Founded in 1965 by parents of young patients and caregivers, Vaincre la Mucoviscidose is the leading private funder of cystic fibrosis research in France.
Its action is divided into four categories:
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Cure
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Care
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Living better
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Raising awareness
